National Foundation for ME/CFS Researchnationalmecfs.org

Resources · CCI

Craniocervical instability (CCI)

Craniocervical instability is excess movement where the skull meets the top of the spine. These pages are for patients and families working out whether CCI could be part of their picture, how it is assessed, who treats it, and what the treatments can cost in money and in risk.

  • Guide: new to CCI? Start here

    A step-by-step guide to symptoms, imaging, diagnosis and the treatment options, from physical therapy to injections and fusion surgery, with the questions to ask at each step. Compiled from published sources and patient reports; updated October 2026.

  • Providers: map and directories

    Every provider named in the guide on one filterable map (upright MRI, moving X-ray, surgeons, injections, physical therapy, Atlas Orthogonal), a telehealth list, and three state-by-state directories compiled by the Upper Cervical Instability Awareness group. Listing is not an endorsement.

  • Before you commit: the risks of CCI treatment

    What has been published about fusion surgery and upper-cervical injections: complication and revision rates from the surgeons' own series, documented injection harms, why diagnosis is uncertain, what patients report paying, and patient accounts of harm and of benefit. Every figure linked to its source.